LINKS
"Progeria Worldwide"
Research
www.dgfa-aging.de
In February of 1990 scientists from the areas of science and medicine
got together to create the German Society for Aging Research (DGfA). The
results will be announced by publications or lectures at conferences and
placed in an interdisciplinary forum for scientists and physicians to
discuss.
www.gesundheitsberater.de
www.lifeline.de
www.thieme.de
members.xoom.com
www.biofeedb.ac.at
'Progeria in the vocabulary '
www.bio-net.de
A source of information for biological and alternative medicine and health.
OMIM: Online Mendelian Inheritance in Man
On-line Mendelian Inheritance in One: This data bank is a catalogue of
human genes and genetic categories. The authors are Dr. Victor A. McKusick
and his colleagues at the John Hopkins Institute. They developed the National
Center for Biotechnology Information for the world-wide net by NCBI. The
data bank contains text information, pictures, and references.
www.progeriaresearch.org/researchPublications/publications.htm
Here you will find a list of over 100 medical publications related to
Progeria.
Rare Genetic
Diseases In Children:
An extensive catalogue of the organizational and individual websites which
list specific genetic diseases or disease families. This unusual disease
catalogue is divided into seven sections. They also include specific chromosomal
subordinations.
MedExplorer.com
A source of medical and health information. This web site also contains
current health news.
Helpful organizations
www.sunshinefoundation.org
The "Sunshine Foundation" (The "Original Dream Makers")
grants dreams for children with chronic and terminal diseases, including
Spina Bifida, muscular dystrophy, sickle cell anemia, AIDS, cancer, Progeria
and many more.
Hutchinson-Gilford Progeria
Syndrome Resource Center
As one of the first sites with information about "Progeria".
This is a resource for connections, pictures and a discussion forum.
www.progeriaresearch.org
The "Progeria Research Foundation" supports medical research
aimed at discovering the cause, treatment and cure for Progeria, and seeks
to raise awareness about Progeria by educating the families, health professionals
and the general public.
www.mondscheinkinder.de
"MOONLIGHT VILLA": to create a house in Germany for people with
rare genetic illnesses like Progeria, where the families can meet.
www.bkmf.de
At the federal association "Little people, Inc." They and their
families receive information and support for other syndromes that cause
stunted growth.
Hayley's Progeria
Page
Here you meet Hayley: A quite special child with "Progeria"
and her family.
www.geocities.com/lori_and_ashley/
Here you meet Ashley. A quite special child with "Progeria".
Welkom op de website van Michiel
http://www.salem.mass.edu/imc/vietnam/congenital_deformities.html
A child in Vietnam with "Progeria".
www.tomesa.de
Here you can contact Prof. Dr. Med. Wolfgang Kuester (M.D. Mediz. Genetics
and Dermatology) in specialized clinic TOMESA, Bad Salzschlirf, Germany
for "Progerie".
www.altonaer-kinderkrankenhaus.de
Here you can contact Priv. Lecturer Dr. Med. Peter Meinecke (M.D. Medical
Genetics) in the "Altonaer Children's Hospital, Hamburg, Germany,
for "Progerie".
http://www.naturamed.de/index.html
Here you can contact Dr. Med. Vinzenz Mansmann (Naturopathic Treatment),
head of the department Naturmed-Clinic, Bad Waldsee, Germany, for "Progerie".
dedovic@eunet.yu
Here you can contact Dr. Med. Miroslav Dedovic (M.D. Paediatrics and Neonatologist)
in Belgrade, Serbia, for "Progerie".
nelcioglu@hotmail.com
Here you can contact Mrs. Dr. Med. Nursel Elcioglu (M.D. Paediatrics and
Clinical Genetics) in Istanbul, Turkey, for "Progerie".
cormay@open.by
Here you can contact Mrs. MD Natallia Rumiantsava and MD Irina Naumchik
(M.D. Human Genetics), Institute of Rare Genetic Illnesses, Minsk, Belarus,
for "Progerie".
www.csh.dk
Here you can contact physicians in different human-genetic institutes
in Denmark for "Progerie".
www.progeriaresearch.org/infoPhys/register.htm
Here you can contact Dr. Med. W. Ted Brown, USA, Register for Progeria-Syndroms.
www.tusalud.com.mx
Here you can get informations and contacts in Mexico for "Progeria".
Press reports
www.geo.de
"Already as a Child a Old Person': article GEO-MAGAZINE, issue no.
1, 4 March 1991, Germany
www.zeit.de
"Joscha Lives Faster": article Time Magazine, issue no. 35,
2 August 1997, Germany
a special
article about twins with progeria in USA
"Progeria Reunion": article about the family meeting, issue
June, 2000, the USA
www.stern.de
"The Young Old Men": article about Sarah and Joscha, issue no.
22, 23 May 2001, Germany
"Burton Report":
article about Danny from england
www.ndr.de
"Eternal youth": film report in two parts "Age" ("Grow
Old") and the causes (Progerie), broadcasting stations NDR3: "PRISMA",
in 1994 from Oliver Tolmein, Germany
www.RTL2.de
"Children in the time-lapse photography": the first film report
in Europe about the subject of "Progerie" and affected European
families, broadcasting stations RTL2: "Exclusive - the Report",
in 1997 from Barbara Koch, Germany
www.prosieben.de "Reunion in
1997 in Atlanta": Film report on "Progerie" and a family
in Canada, broadcasting station Pro7: "World of the Miracles",
Canada
'Before
Their Time': a film about Ashley, TV Ontario, 1997 by David Way, Canada
www.zdf.de
"Children and Death": film report on European "Progeria
Families" and the European meeting in the Netherlands, broadcasting
station ZDF: 'Mona Lisa', December, 1998 by Martina Morawietz, Germany
www.mdr.de
"Old Men Children": film report on Joana Lucia from Romania,
broadcasting station MDR: "To Be Old" BRISANT', 19 September
2000, Germany (Romania)
www.sfdrs.ch/dok
"Sabrina - Tooo Young Around"': film documentation about Sabrina
from Switzerland, broadcasting station "3SAT" , 23 May 2001
from Elsbeth Leisinger, Switzerland
BBC-Dokumentation
about "Progeria"
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